Sunday, 11 December 2011

aaaaaaaaaaaaaaaaaaaaaaaaaaaargh

I think the government reckon life as a disabled person is easy! I have MS, a stress induced illness which has made me need to learn to walk again 3 times, teach myself how to cope with side effects of treatments that are supposed to 'help'. It's been a hard road! Now my DLA is up for renewal, I filled the form in months ago and sent it back. I had to call to check what was happening because the date it expired was fast-approaching and I hadn't heard anything. Got told they were waiting on reports from my GP and consultant. My date for it expiring came and went without any word so I called them again. They hadn't got the reports back so my money is now stopped until they get them. I called my consultant's secretary to find out if he had done my report yet and...HE'S ON HOLIDAY! So I have to stress myself out some more, worrying about money especially at christmas time while he is off enjoying a holiday without any financial worries and there's NOBODY in the hospital that could of done my report to save me having to go without any money for over a week!
There's an advert on tv about critical illness insurance or something and it says being diagnosed with a long term illness is hard and savings only go so far (or it was something along those lines) but, what happens if you get ill at 21 while you are in the middle of studying to become a primary school teacher and have debt rather than savings?
This is me! I had credit cards, student loan and student overdraft when I got ill and was unable to return to uni. I struggled on benefits to pay my bills every month on top of living, which I managed for almost 3 years. It got to the point where the debt was getting worse because of interest. I got help from welfare rights and eventualy, after trying many other options first, I went bankrupt! I was gutted because I felt like a complete failure! It was hardly my fault that I had MS and was unable to finish my degree and get my dream job. I got pretty depressed and was suicidal a lot but never let it beat me!
I wish the government would realise that sitting filling in a DLA form every 3 years when you have a degenerative illness is depressing! It means sitting down and realising things that have got worse since the last time and how much the body has degenerated! Surely when someone gets diagnosed with something like MS, through no fault of their own, it would take a lot of stress off of them to just award them high rate of both components for life? Then they can feel safe in the knowledge that they don't have to reflect on  how bad they are getting every 3 years when a pen pusher in an office can decide your fate by choosing whether to approve your claim! It's not going to go away, there is no cure!
Ok, rant over! I'm going to have a cup of tea and relax a little...or at least try!

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